Wednesday, November 5, 2014

Cystic Fibrosis Foundation

Our RAAM training is progressing well, and we have just returned from an excellent training camp in Tucson with the other riders and most of the crew. It was an intensive weekend involving riding and organising in almost equal measures. It was a great learning experience, and we know whatever happens next June, there will be a lot of laughs with our amazing crew. Most of whom we were meeting for the first time, and we seemed to gel really well - we’re looking forward to more opportunities to get to know them before the Big Opportunity next June!

The team also had the privilege of being invited to lunch with the McAllisters, a local couple who have two granddaughters with cystic fibrosis, who we got to meet. It was a very touching reminder of the larger goal and why we’re putting ourselves through this, and we are grateful for the local chapter of the Cystic Fibrosis Foundation for organising it. There has been a few big steps forward in the treatment of CF in the last few years, and there is at least a glimmer of hope for some sufferers. While a complete cure is still some way away, the treatments now available and (hopefully) those in development offer a better standard of living for longer. The development cost is huge, but it is one of those problems where the money is having a real effect and the new treatments are making a huge difference to suffers. The sheer number of genetic variants of the disease also increases costs - there is no silver bullet here.
So, thank-you to everyone who has donated money so far. It’s making a difference!

IMG_0427 (1) (800x533).jpg
Love Sweat & Gears Tandem Team 2015. - racing so kids can breathe.